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[ABC系列]：法人团体Body Corporate-1080P高清迅雷网盘下载
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由安德鲁·福勒（Award Andrew Fowler）主持的社会政治纪录片，由美国广播公司（ABC）发行，在2010年作为美国广播公司（ABC）四角系列的一部分播出-英语旁白Sociopolitical Documentary hosted by Andrew Fowler, published by ABC broadcasted as part of ABC Four Corners series in 2010- English narration
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机构CorporateReporter：Andrew Fowler广播：06/09/2010目前，在全球范围内，围绕着一个简单的问题展开了一场重大的法律和科学之战：我们应允许个人和公司为基因申请专利吗？一些生物技术公司说可以，声称专利奖励医学研究并促进对挽救生命的治疗方法的研究。其他人则有不同的看法，他们将专利描述为一种生物技术领域的抢劫，它与患者无关，而与贪婪有关。利亚姆（Liam）已有5岁。随着他的成长，他的父母意识到他的状况使学习变得困难。然后他看上去似乎很癫痫发作。他的医生以为这个小男孩患有Dravet综合征，但唯一可以确定的方法是进行基因测试，以了解Liam是否具有与癫痫症相关的关键基因。毕竟，澳大利亚科学家发现了该基因，并将其与癫痫病联系起来，为其申请了专利，并开发了一种诊断测试。问题在于这些研究人员将权利出售给了另一家希望获得投资回报的澳大利亚公司。要返回该表格，它会收取许可费，这意味着每次在澳大利亚进行检查都需要支付2,000澳元的费用。接受利亚姆治疗的医院无力支付费用，而是将样本送往国外进行检查他们只收取了原始要价的三分之一。但是，这种选择花费了更多时间，使小男孩及其家人陷入困境。利亚姆的家人并非唯一让情况受到挫折的公司允许公司收取任何费用来确认患者是否患有严重的健康状况，仅仅是因为它拥有特定基因的专利权。消费者健康活动家们并没有坐以待.。在美国，他们将拥有与乳腺癌相关基因的专利权的公司告上了法庭。活动人士认为，拥有天然突变乳癌基因的专利是非法的。法官同意了，现在这个问题将在美国法律体系的最高层进行检验。在澳大利亚，一场类似的法庭之战正在逼近，数百万美元现在悬而未决。可以理解的是，患者感到困惑，生物技术公司不会轻易放弃他们的权利。他们警告说，如果没有专利，医学研究将减少，患者将遭受痛苦。本周在四个角落，记者安德鲁·福勒（Andrew Fowler）前往美国和澳大利亚各地，在这场高风险的战斗中听取了双方的声音。他与被迫支付巨额资金的研究人员，专利律师和家庭进行了交谈，以查明他们是否具有与可能威胁生命的疾病相关的基因。谁是对的？生活的基础本身是否可以申请专利并出售？一个可能使我们成为我们自己的独特基因可能会被一个我们不认识的人申请专利，然后特许给一家大公司？谁是对的？生活的基础本身是否可以申请专利并出售？一个可能使我们成为我们自己的独特基因可能会被一个我们不认识的人申请专利，然后特许给一家大公司？谁是对的？生活的基础本身是否可以申请专利并出售？一个可能使我们成为我们自己的独特基因可能会被一个我们不认识的人申请专利，然后特许给一家大公司？Body CorporateReporter: Andrew FowlerBroadcast: 06/09/2010Right now across the globe there is a major legal and scientific battle raging over one simple question: should we allow individuals and corporations to patent genes? Some biotech companies say yes, claiming patents reward medical research and promote the investigation of life saving treatments. Others see it very differently, describing patenting as a biotech land-grab that's less about patients and more about greed.Liam is five years old. As he grew, his parents realised he had a condition that made learning difficult. Then he had what seemed to be an epileptic fit. His doctor thought the young boy had Dravet syndrome, but the only way to be sure was to have a genetic test to see if Liam had a crucial gene linked with epilepsy.It should have been straightforward. After all, Australian scientists discovered the gene, linked it to epilepsy, patented it and developed a diagnostic test. The problem is that those researchers sold the rights to another Australian company that wants a return on its investment. To make that return it charges a license fee, which means it costs $2,000 every time the test is carried out in Australia.The hospital where Liam was being treated couldn't afford to pay the fee, and instead sent the sample to be tested overseas where they were charged just one third of the original asking price. But this option took more time, leaving the young boy and his family waiting in distress.Liam's family are not the only ones frustrated with a situation that allows a company to charge whatever it likes to confirm a patient has a serious health condition, simply because it holds patent rights to a particular gene.And consumer health activists are not sitting still. In the United States, they took the company that held patent rights over a gene linked to breast cancer to court. The activists argued it was illegal to hold patents on naturally occurring mutant breast cancer genes. The judge agreed, and now the issue is set to be tested at the very top of the American legal system. In Australia, a similar court battle is looming.Millions of dollars now hang in the balance. Patients are understandably confused and the biotech companies will not easily give up their rights. They warn that without a patent, medical research will diminish and patients will suffer.This week on Four Corners, reporter Andrew Fowler travels to the United States and around Australia to hear from both sides in this high-stakes battle. He talks to the researchers, patent lawyers and families who have been forced to pay significant amounts of money to find out if they have genes linked to potentially life-threatening conditions.Who is right? Can the very basis of life itself be patented and sold? Is it possible that a unique gene that makes us what we are could be patented by someone we don't know and then franchised out to a major corporation?
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【技术参数】——
Duration: 43mn 32s
Filesize: 601 MiB
Format: Matroska
视频编码: x264 core 93 r1542 5b86182
比特率: 1 800 Kbps
Video 分辨率: 1016 x 568
Video 画面比例: 16:9
帧速率: 25.000
Bits-(Pixel*Frame) 0.125
音频编码: AAC
音频比特率: 128 kb/s 48KHz
Audio 声道数: 2
Audio language: English
Subtitles: English
来源: DVB-T
Capture: DVBViewer
Demuxer: ProtectX
Encoder: Avidemux 2.5.3
Muxer: MKVMerge【Technical Specs】——
Duration: 43mn 32s
Filesize: 601 MiB
Format: Matroska
Video Codec: x264 core 93 r1542 5b86182
Video Bitrate: 1 800 Kbps
Video Resolution: 1016 x 568
Video Aspect Ratio: 16:9
Frames Per Second: 25.000
Bits-(Pixel*Frame) 0.125
Audio Codec: AAC
Audio Bitrate: 128 kb/s 48KHz
Audio Channels: 2
Audio language: English
Subtitles: English
Source: DVB-T
Capture: DVBViewer
Demuxer: ProtectX
Encoder: Avidemux 2.5.3
Muxer: MKVMerge
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相关纪录片：
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Links
Release Post
MVGroup.org (ed2k)
MVGroup.org (torrent)
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发表于 2020-7-13 23:17:35
发表于 2020-7-16 23:02:03